Special Collection | Ethical Issues in Citizen Science✎
Citizen science can challenge existing ethical norms because it falls outside of customary methods of ensuring that research is conducted ethically. What ethical issues arise when engaging the public in research? How have these issues been addressed, and how should they be addressed in the future?
Several papers in this collection address collaborations with human beings: What to call them when they are not mere passive subjects of research; what ethical issues arise when citizen scientists are also patients reporting their own data; how to acknowledge the significant contributions of volunteers to research; how to foster inclusion, diversity, and trust; and how to establish accurate expectations for collaboration. Other papers consider potential challenges of citizen science that was not conducted ethically, including the possibility of research misconduct, disagreements between collaborators, or poor scientific methodology.
Together, this collection of papers shows a young and rapidly growing field grappling thoughtfully with numerous challenges that citizen scientists and practitioners are finding in their work.
- Editorial Content. Citizen Science Ethics | Lisa M. Rasmussen, Caren Cooper
- Essays. Data Donation as a Model for Citizen Science Health Research | Matthew Bietz, Kevin Patrick, Cinnamon Bloss
- Essays. Project Categories to Guide Institutional Oversight of Responsible Conduct of Scientists Leading Citizen Science in the United States | Caren Cooper, Lea Shanley, Teresa Scassa, Effy Vayena
- Essays. The Promise of Participation and Decision-Making Power in Citizen Science | Irene Eleta, Gemma Galdon Clavell, Valeria Righi, Mara Balestrini
- Essays. Philosophical Foundations for Citizen Science | Kevin C. Elliott, Jon Rosenberg
- Research Papers. Confronting Research Misconduct in Citizen Science | Lisa M. Rasmussen
- Research Papers. Citizen Scientists as Human Subjects: Ethical Issues | David B. Resnik
- Case Studies. Citizen Science During the Flint, Michigan Federal Water Emergency: Ethical Dilemmas and Lessons Learned | Siddhartha Roy, Marc Edwards
- Case Studies. Reflecting on Efforts to Design an Inclusive Citizen Science Project in West Baltimore | Amanda E. Sorensen, Rebecca C. Jordan, Shannon L. LaDeau, Dawn Biehler, Sacoby Wilson, John-Henry Pitas, Paul T. Leisnham
- Case Studies. Designing a Platform for Ethical Citizen Science: A Case Study of CitSci.org | Stacy J. Lynn, Nicole Kaplan, Sarah Newman, Russell Scarpino, Greg Newman
- Research Papers. Patients as Research Partners; How to Value their Perceptions, Contribution and Labor? | Elise Smith, Jean-Christophe Bélisle-Pipon, David Resnik